MRE & Me

I was recently honored by Resoundant, the makers of Magnetic Resonance Elastography (MRE) equipment that provides a non-invasive image liver by them sharing my personal story. MRE is a preferred technology for imaging of the liver¹ due to its detail and ability to accurately assess liver fibrosis in liver disease patients. Having undergone a MRE … More MRE & Me

What I learned from the 2017 Liver Meeting® in Washington D.C.

I had the privilege of attending AASLD’s 2017 Liver Meeting® which is the largest conference for liver specialists in the US. I attended this conference as a member of PBCers Organization (the largest US based support group) as an exhibitor, along with several others from this organization. It was a fruitful event as we were … More What I learned from the 2017 Liver Meeting® in Washington D.C.

Changes at OPTN – Enhancing Liver Distribution You may be aware that OPTN (Organ Procurement and Transplantation Network or UNOS) is proposing a change to the way it distributes livers to those awaiting a transplant. Essentially the program has become a boondoggle of bureaucracy and dysfunction. For the past five years various groups, committees and stakeholders … More

A bright new day

When someone asks me why I am so tired all the time, I take the time to explain that I have a rare, chronic autoimmune disease that is slowly destroying my liver. This statement usually elicits further interest and gives me an opportunity to talk about liver disease and specifically about the liver disease that … More A bright new day